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Rare Disease Platform

About 30 million EU citizens are affected by more than 6000 different rare diseases and the information is spread between hundreds of registries at national and regional levels.

The EU Rare Disease platform aims to provide a consistent tool for researchers, healthcare providers, patients, and policymakers to improve knowledge, diagnosis, and treatment of rare diseases. It will make registry data searchable at the EU level and standardise data collection and exchange, increasing the validity of each registry and its registration.

Find out more on the EU Rare Disease platform.

The European Commission’s priorities:
Promoting our European way of life

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