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Rare Disease Platform

About 30 million EU citizens are affected by more than 6000 different rare diseases and the information is spread between hundreds of registries at national and regional levels.

The EU Rare Disease platform aims to provide a consistent tool for researchers, healthcare providers, patients, and policymakers to improve knowledge, diagnosis, and treatment of rare diseases. It will make registry data searchable at the EU level and standardise data collection and exchange, increasing the validity of each registry and its registration.

Find out more on the EU Rare Disease platform.

The European Commission’s priorities:

About JRC Digital Media Hub

JRC Digital Media Hub helps you easily discover how the European Commission's Joint Research Centre (JRC) scientific research and advice are linked to our daily lives in the European Union.
You can explore our vast collection of animations, infographics, games, videos, virtual tours and other media by any science topic or Commission Priority according to your interests.
We are proud to tell about EU Science and open our doors to you. We invite you to explore and share our engaging digital content.

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